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M uch of what you may find benefits or causes problems for you whilst taking levothyroxine will probably result from trial and error, howeve...
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"W hat allows the brain to work quickly and efficiently is its energy supply . If this is impaired in any way, then the brain will go slow ....
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Which Charity
Which Charity was a website set up by myself and friends, with the aim of allowing users to find causes they are interested in and ways of helping they prefer. It also had the aim of raising awareness of and supporting various charities through free advertising.
Check out the official video here:
http://www.youtube.com/user/WhichCharity
..and 'The Charity Supplement' here:
http://www.scribd.com/Which%20Charity
(note that there are many thyroid awareness documents included in this list)
The website has now been handed over to a new team of keen, qualified individuals who have the time to take it further.
Monday, 20 July 2009
Oh dear, the Alien Symptom's Back Again
Note: This post was originally written on the thyroidhelp.org forum, in my personal blog. Originally I had decided not to post it here because it didn't seem to fit with what should be here - as a blog encouraging awareness of thyroid disease and so also addressing the issues in the media with the lack of it, I had wanted there to only be articles relating to this, along with any multimedia parts which would be useful.
However, I would be interested to hear your thoughts about this blog post if you are a current thyroid sufferer, or indeed if you are anyone else.
Do you experience this same symptom?
What are your best methods of dealing/overcoming it?
I think it may be useful if you do have it and do not realise it is your thyroid causing it - I believe that it is. And, to rationalise including this post further, if you are 'anyone else' and experience this symptom, it aggravates you and maybe you have a few other symptoms too, but not many, get your thyroid checked! It doesn't do any harm just to check it.
However, I would be interested to hear your thoughts about this blog post if you are a current thyroid sufferer, or indeed if you are anyone else.
Do you experience this same symptom?
What are your best methods of dealing/overcoming it?
I think it may be useful if you do have it and do not realise it is your thyroid causing it - I believe that it is. And, to rationalise including this post further, if you are 'anyone else' and experience this symptom, it aggravates you and maybe you have a few other symptoms too, but not many, get your thyroid checked! It doesn't do any harm just to check it.
Post originally written at: Wed Jul 15, 2009 9:11 pm
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I don't know why I call it the 'Alien symptom' - I've just made it up, but for now it seems to fit. I get it often, usually when I really need to concentrate and take in what's being said or what I need to learn. I think it's some of that 'brain fog', it's like someone's pulled a curtain over my eye that won't hang properly, and everything just goes blurred. I am trying to read a page in front of me, but I cannot see it properly: I try to blink, to shake my head a little, and in some cases it works but in others it doesn't do a thing. It happens in kickboxing - I am trying to watch a routine that's being showed about four times over, and usually an extra time just for me, and I am having to force myself to 'wake up', 'listen', 'concentrate'.
There is an old little motto that I used not many years ago, before I found out I was hypothyroid, and was finding concentration a difficult task; in fact I even used it once to get myself to sleep with a burning ear infection: 'easy, easy, concentrate, easy, easy, concentrate', over and over until it made a difference, and then when it was needed again, not long after, I'd think it or whisper or say it aloud all over again, over and over until it made a difference. I think this motto ought to come back strong into my mind in times of Alien symptom (I will think of a better name for it at some point. Maybe I should call it 'Blur'?).
Why do I name it 'Alien symptom' for now? Because during this point listening is extremely hard; reading or watching something even harder, and I have literally 'blanked out' of reality's presence. I am almost completely unable to communicate - if I must, it requires force and effort, the thought-process of which means that listening and taking in cannot happen at the same time. I am there and yet not there, fading away into the background, and what I missed will no doubt come back to haunt me later.
It happened today during an interview, for longer than I expected, too. Luckily it was during a point when I was only needed to listen and look - I suppose stress, adrenaline, all, reduced suddenly and then hit the reality of blankness that is a hypothyroid's (or mine, anyway) world. It came at first with quite a strength, and I blinked and discreetly shook it away, and then it immediately came back again, and there it stayed until it was ready to go. It was like I was entering a daydream; I can imagine my eyes were just wide and staring, my entire body stunned into a locked position. What is this?
When it went I carried on as I ought, although with a dreading thought about the important points that I'd missed. It has happened a few times since, although never for as long and not as bad as that time earlier today.
I do get this frequently, but I am assuming that it is purely because of my low thyroid - when my thyroid was actually 'normal' I don't remember experiencing it, but perhaps I was just too excited by the new-found freedom and lightness, bounding along as I was, that I didn't notice.
Does anyone else get this? Do you think it is the thyroid, or related to something else?
I suppose it makes sense for anyone who is not quite at perfect health, or still far off, to, during a demanding few hours, where there comes a sudden rest, a steady target for the eyes, and no water despite an easily dehydrated person, to jump at the chance of blanking out.
I don't know why I call it the 'Alien symptom' - I've just made it up, but for now it seems to fit. I get it often, usually when I really need to concentrate and take in what's being said or what I need to learn. I think it's some of that 'brain fog', it's like someone's pulled a curtain over my eye that won't hang properly, and everything just goes blurred. I am trying to read a page in front of me, but I cannot see it properly: I try to blink, to shake my head a little, and in some cases it works but in others it doesn't do a thing. It happens in kickboxing - I am trying to watch a routine that's being showed about four times over, and usually an extra time just for me, and I am having to force myself to 'wake up', 'listen', 'concentrate'.
There is an old little motto that I used not many years ago, before I found out I was hypothyroid, and was finding concentration a difficult task; in fact I even used it once to get myself to sleep with a burning ear infection: 'easy, easy, concentrate, easy, easy, concentrate', over and over until it made a difference, and then when it was needed again, not long after, I'd think it or whisper or say it aloud all over again, over and over until it made a difference. I think this motto ought to come back strong into my mind in times of Alien symptom (I will think of a better name for it at some point. Maybe I should call it 'Blur'?).
Why do I name it 'Alien symptom' for now? Because during this point listening is extremely hard; reading or watching something even harder, and I have literally 'blanked out' of reality's presence. I am almost completely unable to communicate - if I must, it requires force and effort, the thought-process of which means that listening and taking in cannot happen at the same time. I am there and yet not there, fading away into the background, and what I missed will no doubt come back to haunt me later.
It happened today during an interview, for longer than I expected, too. Luckily it was during a point when I was only needed to listen and look - I suppose stress, adrenaline, all, reduced suddenly and then hit the reality of blankness that is a hypothyroid's (or mine, anyway) world. It came at first with quite a strength, and I blinked and discreetly shook it away, and then it immediately came back again, and there it stayed until it was ready to go. It was like I was entering a daydream; I can imagine my eyes were just wide and staring, my entire body stunned into a locked position. What is this?
When it went I carried on as I ought, although with a dreading thought about the important points that I'd missed. It has happened a few times since, although never for as long and not as bad as that time earlier today.
I do get this frequently, but I am assuming that it is purely because of my low thyroid - when my thyroid was actually 'normal' I don't remember experiencing it, but perhaps I was just too excited by the new-found freedom and lightness, bounding along as I was, that I didn't notice.
Does anyone else get this? Do you think it is the thyroid, or related to something else?
I suppose it makes sense for anyone who is not quite at perfect health, or still far off, to, during a demanding few hours, where there comes a sudden rest, a steady target for the eyes, and no water despite an easily dehydrated person, to jump at the chance of blanking out.
Thursday, 16 July 2009
Edited photo picturising the barrier(s) to awareness

Please comment - thoughts, suggestions, criticisms, tips, arguments, discussions, whatever...
Yes, alright, it WAS a beautiful photo :-P
Wednesday, 15 July 2009
New tags for the blog entries added
So, I've added some extra tags for all the blog entries so far to help distinguish between entries which may be of use to you whether you are a thyroid sufferer; newbie, or anyone else - just interested; friend or relative of a thyroid sufferer; anyone in the media perhaps...?
The new tags are:
The new tags are:
Thyroid Newbie
Current Sufferer
Any one
To locate blog posts quickly in these categories, just type the tag in the search box on the left.
Bear in mind that you are still entitled to read other posts even if it is not in 'your' category - they may be interesting and useful to you.
The 'any one' category means, like it says, that any one can read it - they are writing entries and awareness entries, and great for people who are hearing for the first time about thyroid disease.
If there are any other tags which you think may be useful to you, please let me know and I'll add them. Also please answer my poll (on left) so that I can better tell who is reading this blog and can tune what I write towards you.
Current Sufferer
Any one
To locate blog posts quickly in these categories, just type the tag in the search box on the left.
Bear in mind that you are still entitled to read other posts even if it is not in 'your' category - they may be interesting and useful to you.
The 'any one' category means, like it says, that any one can read it - they are writing entries and awareness entries, and great for people who are hearing for the first time about thyroid disease.
If there are any other tags which you think may be useful to you, please let me know and I'll add them. Also please answer my poll (on left) so that I can better tell who is reading this blog and can tune what I write towards you.
Tuesday, 14 July 2009
13 Reasons For A Poppycock State Of Awareness
13 reasons...
...not to be harsh on those who didn't spot our thyroid disease years ago...
...not to complain for the lack of pointing at our necks
Rant of the day.......not to be harsh on those who didn't spot our thyroid disease years ago...
...not to complain for the lack of pointing at our necks
- 1) INNOCENCE - They didn't know - thyroid awareness is so absolutely rubbish that how could they?
- 2) LACK OF ORIGINALITY - The symptoms are so common that they thought it was "just you" and that was the end of that. Come on, fellow thyroid patients, let's use our imagination and create more original symptoms to cue the "danger" alerts in their brains!
- 3) "IT'S YOU, YOU, YOU" - They pointed at your personality; your academic abilities; other reasons, to explain your strangeness. It's not their fault that they couldn't see the cause.
- 4) EVERLASTING - They have always known you that way and so cannot see that it might be a disease.
- 5) Pshh, it's probably nothing to worry about! Ignorance.
- 6) TEACHERS - especially PE and Science teachers: well, you get on and do your work as you should, so you're not causing such a big problem like the hyperactive ones....yes, THAT'S because I'm HYPOthyroid!
- 7) Pshh, it's just puberty!
- 8) TEACHERS - Hmm...maybe some extra lessons, and then more extra lessons, will do the trick! Have you ever thought of the wider view? That not everything is focused on school?
- 9) DOCTORS - Specifics come to them presented in the order that the list portrays. Without those specifics they will not test for more specifics. They will not ask if you have the specifics because, well, now that would be a leading question, wouldn't it?
- 10)...and US - But when you are living in that state of everlastingness, assuming that anything is just "you" and not pinpointing those specifics because you do not realise that they are not normal - why would you if you are so used to them and they are just "you"? - you will not notice them until you start to compare yourself to others and you cannot do that in a state of total mind-blank, staring-into-space-because-your-head-cannot-focus-on-the-fast-movements-around-you - therefore, to conclude this extra-long sentence, you won't point out the specifics, therefore the doctor's cannot possible see it. It is a symptom-directed, check the box world, that we live in, and unless you check enough of those boxes in the doctor's head or on paper, they cannot possibly diagnose you.
- 10b) Still US - Well, when our thyroid goes down, do we notice it immediately? No we don't. Why? Because it goes with the culture of life - "ah, I'm just tired today, how interesting" ...No, you silly, silly person, remember, it's your thyroid! And two or three weeks later we are sleeping half the day and dizzy the rest of it, looking like a version of Michael Jackson's 'Thriller' when we walk! Not making that mistake again!
- 10) THE MEDIA - Newsworthiness: Pshh, they're not life threatening, so let's not mention it. It doesn't match our news values.
- 11) EDUCATION AND THE TEXTBOOKS - Particularly all that rubbish about growing up: pssh, well not EVERYBODY gets it, do they? - No, but many do. - Ah well, if they're short, they're short, there's no reason to cause a panic. - True, but if you tell them, they might actually grow!
- 12) THE GOVERNMENT, TEACHERS, BUREAUCRACY - relating to the above: "Well if it's not in the syllabus, then DON'T mention it, you're wasting time and money!"
- 13) And for those who spot the more personal symptoms which often relate to the thyroid and which are not, by this society, 'normal', but fail to point you anywhere near a blood test: "well, it's too personal, isn't it? I mean, you can't mention that!" Fear.
- 14) Finally...FELLOW PEERS - well, of course you wouldn't notice - anything strange would either become the jokes or not-so-funny-jokes of our school days, or would simply be what you associated with me. Of course you couldn't of guessed - you weren't taught it, not ever, and it's not advertised, not anywhere.
So, let's make sure we're not harsh on the ignorance of others!
Seriously though, every poster in a GP surgery is seen by at least one eye; every paragraph in a textbook by at least one student, and a gory picture by the whole class; every advert, or skimmed-through news announcement on the television, or online news, is also seen by at least one eye, or heard by at least one ear - that's an awful lot of simple awareness that we're missing out on. And it can mean years of difference for an undiagnosed, unsuspecting - except for perhaps the 'weirdness' that they cannot explain - child, teenager, student, adult, mother, father, you.
Let's sort it. Now.
Wednesday, 8 July 2009
Writing: Tiredness
Of note: Written I think shortly after starting Levothyroxine
Slightly edited
Tiredness.
It feels like a rock, pressed hard on my shoulders.
It feels like a tube, like a straw wound around my veins.
Someone is sucking at the other end. Food - but they leave me all the rubbish. Human or creature? Man or woman? I cannot tell. I toy with either: sometimes it is enjoyable to be indecisive. I can see, with those eyes that are not quite eyes but still serve their function, a mouth, human-like (at first, at least), big bulging red lips, with a hint of grey in them too. The lips press tightly together, pursing red, then they retreat and ball out into a perfectly oval shape before snapping shut again. At every breath a surge of hot air floods dramatically through that thin straw. Thick and stodgy, like blood, it refuses to separate for transportation. Instead it bombards the entire passageway and drags the straw deeper into my head. The piled stodge eventually thrusts forward, the sheer power of its force causing the entire bunch to splat like catapulted paint, on every nook and cranny within its sight. And then eventually the straw is ripped apart, and each and every breath fires momentarily into my already flooded brain. Tiredness. Fatigue. Someone out there feeds off second-hand energy. Someone out there breathes exceptionally powerful breathes. A creature then, surely. Ay, I wish to meet this one too: I'd ask it why he or she feeds off me, and why it can't simply remove the nasty bits and leave the good bits of my body's insides. I'd ask it if it could please organise its meal times adequately, steal at night-time, then. I'd ask this creature, why does he come so often? A never-ending thief, well-trained and highly successful. Impossible to catch, but always worth a try.
Perhaps, I think I'd ask, does he come and stay this way because of his irritable stomach? Does he, too, eat little and often?!
Slightly edited
Tiredness.
It feels like a rock, pressed hard on my shoulders.
It feels like a tube, like a straw wound around my veins.
Someone is sucking at the other end. Food - but they leave me all the rubbish. Human or creature? Man or woman? I cannot tell. I toy with either: sometimes it is enjoyable to be indecisive. I can see, with those eyes that are not quite eyes but still serve their function, a mouth, human-like (at first, at least), big bulging red lips, with a hint of grey in them too. The lips press tightly together, pursing red, then they retreat and ball out into a perfectly oval shape before snapping shut again. At every breath a surge of hot air floods dramatically through that thin straw. Thick and stodgy, like blood, it refuses to separate for transportation. Instead it bombards the entire passageway and drags the straw deeper into my head. The piled stodge eventually thrusts forward, the sheer power of its force causing the entire bunch to splat like catapulted paint, on every nook and cranny within its sight. And then eventually the straw is ripped apart, and each and every breath fires momentarily into my already flooded brain. Tiredness. Fatigue. Someone out there feeds off second-hand energy. Someone out there breathes exceptionally powerful breathes. A creature then, surely. Ay, I wish to meet this one too: I'd ask it why he or she feeds off me, and why it can't simply remove the nasty bits and leave the good bits of my body's insides. I'd ask it if it could please organise its meal times adequately, steal at night-time, then. I'd ask this creature, why does he come so often? A never-ending thief, well-trained and highly successful. Impossible to catch, but always worth a try.
Perhaps, I think I'd ask, does he come and stay this way because of his irritable stomach? Does he, too, eat little and often?!
Saturday, 4 July 2009
Tips whilst taking levothyroxine (for hypothyroidism)
Much of what you may find benefits or causes problems for you whilst taking levothyroxine will probably result from trial and error, however, these tips may help you if you have just been diagnosed, or if you are having some difficulty with your medication dose.
As a note, when I refer to 'problems whilst taking levothyroxine', I generally mean variations in your thyroid levels and hence the dose of the medication - unless otherwise stated.
Tip 1 - Your diet and your thyroid
I have been reading about some foods which should be avoided if you're trying to increase or maintain the function of your thyroid. Where this information is posted it must be read fairly sceptically because often you would have to take these foods in unrealistic amounts for the apparent problems to happen. Still, if you do happen to eat rather a lot of them, and have just been diagnosed with hypothyroidism, or if your thyroid levels have dropped recently and it is possible that this is due to eating more of these types of foods, it may be worth avoiding them.
The foods are:
TIP 2 - Drink and the thyroid
I have read on some sites that alcohol may aggrevate the thyroid. On Thyroid UK's symptom checker alcohol intolerance is actually listed, and I would tend to agree with the existance of this symptom. Whether or not alcohol should or should not be avoided, my general stance is that if it's bad for you, the chances are it's going to do your medical condition worse - so avoid it. Of course, if you already drink it occasionally and see no need to change, then this is fine - occassional should do you no harm. However, if you currently do not drink, or haven't drunk in a while and are planning to try some soon, remember to keep an eye on your thyroid levels and perhaps assume that if there is no other reason for any change which might appear, then it is due to the alcholol.
TIP 4 - How much time before breakfast?
If you search this one on the internet, you may find conflicting information: some say half an hour; some say an hour; some even say more. Personally, I think a whole hour, bear in mind you have to take the pills first thing in the morning and then continue with your day, is unrealistic. According to my doctor, half an hour is fine. Last year, when I started taking levothyroxine, I had exactly half an hour before eating breakfast and then leaving for school - and I gradually became 'normal'. As carefulness switched to routine - in some cases rushed, or late in the case of holidays and weekends - and I could no longer say how much time I had been leaving, I am now timing myself - half an hour or more before eating breakfast in the morning.
TIP 5 - What to take with? How much?
TIP 6 - Exercise!
Exercise is always going to be good for you. With an underactive thyroid it is even more important, as exercise raises the metabolism and so, I find, kicks every vital process in the body into action. Be careful to take enough rest and not overdo it if you are still underactive or your dosage is going up and down. As you are going up to 'normal' try to 'work with' your thyroid - do more exercise, eat properly, go out a little more, push yourself that little bit harder and see how far you can go, how much you can do. This way, as your metabolism increases and everything else reacts, you will really start to see results and feel much better. Of course, it does depend on how quickly your body reacts to the levothyroxine - if you cannot find the right dose it may be more difficult to work with these changes or even to notice many of them. I have a theory which I have yet to put any evidence to, in which, once your TSH goes below a certain point (and so your T4 is higher and you are becoming 'normal') things will get much easier - you just have to get to that point. It's a waiting game, unfortunately.
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I will add to this article as and when I find any more information or can add from personal experience. Please, if you have any information relating to this or any of the other articles, or simply wish to question or comment, leave a comment in the box provided.
As a note, when I refer to 'problems whilst taking levothyroxine', I generally mean variations in your thyroid levels and hence the dose of the medication - unless otherwise stated.
Tip 1 - Your diet and your thyroid
I have been reading about some foods which should be avoided if you're trying to increase or maintain the function of your thyroid. Where this information is posted it must be read fairly sceptically because often you would have to take these foods in unrealistic amounts for the apparent problems to happen. Still, if you do happen to eat rather a lot of them, and have just been diagnosed with hypothyroidism, or if your thyroid levels have dropped recently and it is possible that this is due to eating more of these types of foods, it may be worth avoiding them.
The foods are:
- Goitrogenic foods, such as cabbage, Brussels sprouts, broccoli, turnips, rutabagas, kohlrabi, radishes, cauliflower, African cassava, millet, and kale. (Taken from about.com thyroid disease)
- Soy is also a goitrogen and it is probably worth doing some of your own research on this as there appears to be a massive online debate about whether it is good, bad, or harmless and, as with most foods' affect on our health, scientistis appear to be changing their mind about as frequently as my blood test results.
- The general assumption is that, when taken frequently, soy may cause you problems. It is worth checking the ingredients of your foods as many more purchased items contain soy than you might think. For example, there are many cereals which quote how wonderful they are for containing protein - what the protein is, is soy. In addition, watch out for the use of the sauce, and try not to eat excessive tofu.
- About.com Thyroid Disease lists some important tips for those wanting to include soy in their diet and it includes tips relating to how much you should eat and how long after taking your pills - after 3 or 4 hours, apparently, so it may be worth throwing those soy cereals away! - the link is here:
- I am not sure if it is only soy in a specific variety - i.e. soybeans but not soy sauce - so please let me know if you have any information about this, however I would advise generally watching your intake of this ingredient as it appears to be unfriendly to hypothyroids.
- Watch how much milk you are having in the morning after taking levothyroxine, and ensure you only take it a full half an hour or more (see below: Tip 5) after taking the pills. Calcium, but specifically, milk, can affect the absorption of levothyroxine. If your breakfast sizes have increased - perhaps due to increased appetite from a faster metabolism; or from seeking energy from food - and your thyroid levels have gone down, it may be worth reducing those breakfast sizes, eating it later, or switching the milk (or at least most of it) for yoghurt or something else.
- Other foods to avoid, from personal experience, include the harder-to-digest sorts of foods and the high in sugar foods. I am going to start with pizza, which is supposed to be the hardest of all to digest. As of last year I have refused to eat it. It made me terribly dizzy and generally fill ill for some hours after eating eat. Then followed pasta - this is perhaps more of an issue with acid reflux or a slight wheat intolerance - but, as it is a thicker, heavier food, the body is going to struggle to deal with it. If you are finding you need to stop eating this, you can try switching to thinner pastas; using rye or other types instead of usual wheat (alternatives can be easier to digest and healthier); or smaller portions - perhaps pasta mixed with something else.
- The earliest foods I started having trouble with were sweets and chocolate, about 4 years ago, which then grew to all things unhealthy which you would eat on a day out at Thorpe Park - fast food, for instance, and anything that looks all shiny and disgusting with sugar (how did I ever think they looked nice?). The same symptoms would come - a general lightheadness or diziness and just feeling unwell but without too vigorous symptoms, which makes it difficult to explain.
- Thinking about it, it makes sense - foods high in sugar, or generally very heavy, do of course require a fast metabolism (or at least a 'normal' one) to process and deal with.
- Hence a hypothyroid patient, not yet taking medication, is going to be practically unable to deal with the foods correctly. I have not yet tried these foods since being on levothyroxine so I cannot say if it is purely related to being hypo and untreated - however I do notice the same symptoms when my thyroid levels drop, specifcally after meals (when the body is trying to deal with the food intake). My general suggestion would be that if you are experiencing these symptoms, try to work out if they are specifically after eating these foods - if they are, stop and switch. Choose the good options: cereal and seeds are always good! :)
I have read on some sites that alcohol may aggrevate the thyroid. On Thyroid UK's symptom checker alcohol intolerance is actually listed, and I would tend to agree with the existance of this symptom. Whether or not alcohol should or should not be avoided, my general stance is that if it's bad for you, the chances are it's going to do your medical condition worse - so avoid it. Of course, if you already drink it occasionally and see no need to change, then this is fine - occassional should do you no harm. However, if you currently do not drink, or haven't drunk in a while and are planning to try some soon, remember to keep an eye on your thyroid levels and perhaps assume that if there is no other reason for any change which might appear, then it is due to the alcholol.
Speaking from a personal experience, I stopped drinking alcohol shortly after trying and whilst undiagnosed, and haven't touched it since. I generally felt uncomfortable, with some dizziness, etc. I have yet to decide whether to try it again when my thyroid is back to normal. Interestingly, in this forum, some people talk about experiencing similar symptoms whilst taking levothyroxine:
http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=261x732x26432592
http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=261x732x26432592
I can't find much more information for drinks to avoid, but I will share some of the things which I avoid:
Similar to alcholol, I have found that fizzy drinks are a good one to avoid. Thinking about it, they contain nothing much more than sugar and stomach-irritating bubbles! Similar to the food issues, this is of course going to be a difficult one for a struggling and, to be honest, precocuupied, metabolism to manage. To add to this, if you find that acid reflux or heartburn is something you experience, it may be worth avoiding fruit juices except for when you really feel like having them, as they contain more acid. Again, I have not yet tried both of these with a 'normal' thyroid on levothyroxine.
Similar to alcholol, I have found that fizzy drinks are a good one to avoid. Thinking about it, they contain nothing much more than sugar and stomach-irritating bubbles! Similar to the food issues, this is of course going to be a difficult one for a struggling and, to be honest, precocuupied, metabolism to manage. To add to this, if you find that acid reflux or heartburn is something you experience, it may be worth avoiding fruit juices except for when you really feel like having them, as they contain more acid. Again, I have not yet tried both of these with a 'normal' thyroid on levothyroxine.
TIP 3 - Empty Stomach
"Food may delay or reduce the absorption of many drugs, including thyroid hormone. Food can often slow the process of the stomach entering, but it may also affect absorption of the drug you're taking by binding with it, by decreasing access to absorption sites, by altering the rate at which it dissolves, or by changing the stomach's pH balance. This is why many doctors recommend that for best absorption of your thyroid hormone, you should take it first thing the morning, on an empty stomach"http://www.thyroid-info.com/articles/thyroid-drug-faq.htm
TIP 4 - How much time before breakfast?
If you search this one on the internet, you may find conflicting information: some say half an hour; some say an hour; some even say more. Personally, I think a whole hour, bear in mind you have to take the pills first thing in the morning and then continue with your day, is unrealistic. According to my doctor, half an hour is fine. Last year, when I started taking levothyroxine, I had exactly half an hour before eating breakfast and then leaving for school - and I gradually became 'normal'. As carefulness switched to routine - in some cases rushed, or late in the case of holidays and weekends - and I could no longer say how much time I had been leaving, I am now timing myself - half an hour or more before eating breakfast in the morning.
TIP 5 - What to take with? How much?
"It is very important to take levothyroxine with a full glass (8 ounces) of water. The levothyroxine tablet can dissolve very quickly and swell in the throat, possibly causing choking or gagging." http://health.yahoo.com/hormone-medications/levothyroxine/healthwise--d00278a1.htmlAs noted above, watch how much milk you are having in the morning after taking levothyroxine, and ensure you only take it a full half an hour or more after taking the pills. Calcium, but specifically, milk, can affect the absorption of levothyroxine. If your breakfast sizes have increased - perhaps due to increased appetite from a faster metabolism; or from seeking energy from food - and your thyroid levels have gone down, it may be worth reducing those breakfast sizes, eating it later, or switching the milk (or at least most of it) for yoghurt or something else.
TIP 6 - Exercise!
Exercise is always going to be good for you. With an underactive thyroid it is even more important, as exercise raises the metabolism and so, I find, kicks every vital process in the body into action. Be careful to take enough rest and not overdo it if you are still underactive or your dosage is going up and down. As you are going up to 'normal' try to 'work with' your thyroid - do more exercise, eat properly, go out a little more, push yourself that little bit harder and see how far you can go, how much you can do. This way, as your metabolism increases and everything else reacts, you will really start to see results and feel much better. Of course, it does depend on how quickly your body reacts to the levothyroxine - if you cannot find the right dose it may be more difficult to work with these changes or even to notice many of them. I have a theory which I have yet to put any evidence to, in which, once your TSH goes below a certain point (and so your T4 is higher and you are becoming 'normal') things will get much easier - you just have to get to that point. It's a waiting game, unfortunately.
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I will add to this article as and when I find any more information or can add from personal experience. Please, if you have any information relating to this or any of the other articles, or simply wish to question or comment, leave a comment in the box provided.
Friday, 3 July 2009
Awareness In The UK VS The US: This Needs To Be Changed
Note: This is a response to the previous entry where I listed some useful videos to look at relating to the thyroid and the endocrine system.
Here's a funny thing...
Have you noticed that most of the videos below are from the US? From news reports to study guides - doesn't it make you think?
When have you ever seen a news report in the UK, saying "could it be your thyroid?"
When have you ever had a whole section in your science exam at school on the endocrine system and specifically the thyroid?
Please, correct me if I am wrong, but it seems that we, in the UK, really overlook the existence of the thyroid. This needs to be changed. Yes, the US is of course a bigger place, and yes, this does mean that there is a much higher percentage of people with thyroid disease in the US when compared with the UK. But this is no excuse for our nationwide ignoring of the thyroid.
A simple search on the BBC's website shows that Radio 4 does refer to the thyroid, and that there was an article dated 1997 - in reference to the Chernobyl incident - where thyroid cancer was mentioned in some detail. See the article here: http://news.bbc.co.uk/1/hi/special_report/1997/chernobyl/32655.stm
Radio 4? Let me ask you, does Radio 4 target the general population? No.
Does radio output a message as clearly to a modern audience as television? No.
Would a simple, even a short, news report on the evening, or even daytime, television news, be more informative and more effective than the feeble attempt that is currently produced?
Yes.
Useful Videos: The Thyroid + Endocrine System
Here are some YouTube video links explaining the endocrine system (which the thyroid is a part of) and the thyroid itself - great for people who would rather not read:
"Are you experiencing...?...you may have hypothyroidism" - US news video explaining what hypothyroidism is and goes through symptoms:
A very simple, very short video on how the thyroid works:
Talk on how the thyroid is "misunderstood, misdiagnosed, missed":
Here's a US Study Guide video on the endocrine system. It's 7minutes so it may be worth skipping through it a little:
A 3D video taking you step-by-step from the brain to the thyroid:
FOX 30 News: "It could be your thyroid"
Wednesday, 1 July 2009
Writing: Tiredness; shorts
Of note: Two short pieces (edited)
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I am again paralysed. Totally. Still is my body, lost is my head...
Tiredness: the evil player; he spins his web and I coil in retreat. He cannot be fought - nay, his strength is far too mighty for any with a fist. I do not know his name, for he comes and steals my mind, and when he is gone a trail of his footprints remain.
-----------------------------------------
I am again paralysed. Totally. Still is my body, lost is my head...
Tiredness: the evil player; he spins his web and I coil in retreat. He cannot be fought - nay, his strength is far too mighty for any with a fist. I do not know his name, for he comes and steals my mind, and when he is gone a trail of his footprints remain.
Causes of Thyroid disease
CAUSES
"Hyperthyroidism affects up to one in 50 people and can occur at any age, most commonly between 20 and 50." "Hypothyroidism is ten times more common in women than in men and usually occurs over the age of 40."
(BBC Health)
The most common cause of thyroid disease is autoimmune disease. (Hashimotos thyroditis in hypothyroid patients.) This is where the immune system mistakenly attacks the body's tissue, assuming it to be some kind of invader. If it attacks the thyroid it can first stimulate the thyroid and then destroy it. Graves disease is a cause of hyperthyroidism and is where the body produces abnormal antibodies, causing the thyroid to produce more hormones.
Thyroid disease can also be caused by an insufficient iodine intake, which can lead to a goitre (enlargement of the thyroid gland) and hypothyroidism. This is still one of the most common causes worldwide however in the West it is less likely because of the introduction of iodized salt, meaning that our food is not lacking in iodine. However, "approximately 40% of the world’s population remains at risk for iodine deficiency." (Thyroid.org - American Thyroid Association)
Hypothyroidism can also be caused by the radioactive treatment of hyperthyroidism. In fact, any exposure to radiation has been found to lower the production of thyroid hormones - in the case of the Chernobyl incident, for example, one of the aftermath effects has been an increase in thyroid disease and thyroid cancer amongst the people who were living in the area.
Some people are born with thyroid disease, especially if it is autoimmune. This is because someone in their family has the disease.
Some drugs can lead to hypothyroidism. Most websites point to lithium (used to treat depressive disorders) as a drug which can cause this.
It is argued that some foods can also cause thyroid disease - in particular soy products and "goitrogenic" foods, however this is most likely only the case when consumed in massive amounts and so is unlikely to be the cause of a thyroid disease.
TREATMENT
Hypothyroidism is usually treated with synthetic thyroxine drugs such as Levothyroxine. This provides for the naturally occuring thyroid hormone which is not being produced by the body.
The usual adult starting dose is 50 to 100 micrograms however it can take some time to find the correct dose, and the dose may be raised as time goes along. As an example, I started last year on 75 micrograms, then went to 75, with one day of 50; and I am now taking 100 micrograms with one day of 125 - and waiting to find out whether this will have to be raised again as the blood tests suggests. Most people need to take the drugs for the rest of their life.
Hyperthyroidism may be treated with drugs such as through the use of beta-blockers; or surgery may have to be done to remove some of the thyroid tissue. ROI (Radioactive Iodine) may be used to treat hyperthyroidism, however this often results in hypothyroidism (which may then be treated with drugs as above).
The usual adult starting dose is 50 to 100 micrograms however it can take some time to find the correct dose, and the dose may be raised as time goes along. As an example, I started last year on 75 micrograms, then went to 75, with one day of 50; and I am now taking 100 micrograms with one day of 125 - and waiting to find out whether this will have to be raised again as the blood tests suggests. Most people need to take the drugs for the rest of their life.
Hyperthyroidism may be treated with drugs such as through the use of beta-blockers; or surgery may have to be done to remove some of the thyroid tissue. ROI (Radioactive Iodine) may be used to treat hyperthyroidism, however this often results in hypothyroidism (which may then be treated with drugs as above).
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