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M uch of what you may find benefits or causes problems for you whilst taking levothyroxine will probably result from trial and error, howeve...
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'Switch' means change. 'Switch' means exchange. 'Switch,' to me, implies that you are either going back to something or that you will go b...
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"I f it is possible I want to stand in front of millions of people and say: " The jungle is the most important thing for huma...
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Which Charity
Which Charity was a website set up by myself and friends, with the aim of allowing users to find causes they are interested in and ways of helping they prefer. It also had the aim of raising awareness of and supporting various charities through free advertising.
Check out the official video here:
http://www.youtube.com/user/WhichCharity
..and 'The Charity Supplement' here:
http://www.scribd.com/Which%20Charity
(note that there are many thyroid awareness documents included in this list)
The website has now been handed over to a new team of keen, qualified individuals who have the time to take it further.
Sunday, 28 June 2009
Writing: Tiredness
Of note: This one is two different notes combined and I'm not entirely sure when either were written...
Same as before, this is I guess a random entry, so please excuse it if you are looking for factual information...but here is something about a thyroid life:
Tiredness kicks, like a rather angry horse. I fall, my head on the pillow, my eyes closed. I wake, and turn a page, only to fall once again...
Tiredness seems to slip and slither in his welcoming way, right off my head and onto the ground. I watch him fall flat on his back, now no more than an ant, crying and wailing and helpless all the while, kicking a tantrum though there is no one nearby to offer a hand. Until I see my own. My own hand, retracting from my arm, reaching out to his - he grips it - and my arm tugs. My own arm - me - I helped him up. I could see myself watching him there, struggling, but O! Not for long! Like any creature, I thought, any creature in need of help, 'help him' and the thought squealed deep inside me, echoed in my head. I helped him up, an enemy, if you will, though one that I've never nor hope to ever call such a name...but I helped him up.
Same as before, this is I guess a random entry, so please excuse it if you are looking for factual information...but here is something about a thyroid life:
Tiredness kicks, like a rather angry horse. I fall, my head on the pillow, my eyes closed. I wake, and turn a page, only to fall once again...
Tiredness seems to slip and slither in his welcoming way, right off my head and onto the ground. I watch him fall flat on his back, now no more than an ant, crying and wailing and helpless all the while, kicking a tantrum though there is no one nearby to offer a hand. Until I see my own. My own hand, retracting from my arm, reaching out to his - he grips it - and my arm tugs. My own arm - me - I helped him up. I could see myself watching him there, struggling, but O! Not for long! Like any creature, I thought, any creature in need of help, 'help him' and the thought squealed deep inside me, echoed in my head. I helped him up, an enemy, if you will, though one that I've never nor hope to ever call such a name...but I helped him up.
Writing: Tiredness, Time and Dreaming
Of note: written I think shortly after being diagnosed with hypothyroidism.
This is I guess a random entry, so please excuse it if you are looking for factual information...but here is something about a thyroid life:
Time passes by, though I seem hardly aware. My head is flooded with a herd of images. Leaves sweep amongst them, and each one seems able to speak. I seem unable to drag myself away. I look at my watch, and find it is gone eleven o'clock. A full thirty minutes I've been sitting right here, trapped in the dull dreams and entering sleep before sleep is required. A full thirty minutes I've been sitting right here: Yesterday and Tomorrow, I can recall the past; I can predict the future. A full thirty minutes, though not exact, I've been sitting right here. A tortoise on ten legs came and shook at my hand. Behind it there followed a cheetah, and behind him some others of the jungle. Time is so twisted. A full thirty minutes I've been sitting right here. Dreaming. Never by choice, but never without a love of some sort. In school. With friends. In talks. After and before. During and in gaps. A full thirty minutes I've been sitting right here. A dreamer, I am. A dreamer, that's me.
This is I guess a random entry, so please excuse it if you are looking for factual information...but here is something about a thyroid life:
Time passes by, though I seem hardly aware. My head is flooded with a herd of images. Leaves sweep amongst them, and each one seems able to speak. I seem unable to drag myself away. I look at my watch, and find it is gone eleven o'clock. A full thirty minutes I've been sitting right here, trapped in the dull dreams and entering sleep before sleep is required. A full thirty minutes I've been sitting right here: Yesterday and Tomorrow, I can recall the past; I can predict the future. A full thirty minutes, though not exact, I've been sitting right here. A tortoise on ten legs came and shook at my hand. Behind it there followed a cheetah, and behind him some others of the jungle. Time is so twisted. A full thirty minutes I've been sitting right here. Dreaming. Never by choice, but never without a love of some sort. In school. With friends. In talks. After and before. During and in gaps. A full thirty minutes I've been sitting right here. A dreamer, I am. A dreamer, that's me.
Welcome & Thyroid Symptoms
Hi,
Welcome to my thyroid blog. Here I hope to post entries about the symptoms, causes, treatment, and generally the way of life with hypothyroidism. I will do this by explaining everything that I have learnt about the disease since I was diagnosed last year, including some of the things to expect during treatment; by suggesting useful websites and blogs different to my own which can provide you with useful and in some cases official, information; I will also include any creative writing entries which I have found having written them in the midst of a half-awake-half-asleep stage from before and during treatment.
This blog is aimed not only for hypothyroid sufferers, hyperthyroid suffers, or any related diseases including thyroid cancer - it is aimed for people who are interested, just passing by and want to learn something, or, and importantly, people who think they may have a thyroid disease or some kind of problem.
With any thyroid disease it seems to me that you need to know about it in order to find out about it. Of course this means that you may have been living with symptoms for years, and your thyroid may only be getting worse; there may be things about yourself that you have noticed, even that others have noticed - yet no one ever suggests that you have a simple blood test to check your thyroid.
T3 and T4 - hormones produced by the thyroid
TSH - Thyroid Stimulating Hormone; produced by the Pituary Gland in the brain to stimulate the thyroid - quite simply, to tell it to get up and start working!
If you are hypothyroid you will probably have a high TSH (which means that the brain is trying hard to tell the thyroid to work, most likely unsuccessfully) and you will have a low or normal FT4.
If you are hyperthyroid you will probably have a low TSH and a high FT4 and FT3.
Welcome to my thyroid blog. Here I hope to post entries about the symptoms, causes, treatment, and generally the way of life with hypothyroidism. I will do this by explaining everything that I have learnt about the disease since I was diagnosed last year, including some of the things to expect during treatment; by suggesting useful websites and blogs different to my own which can provide you with useful and in some cases official, information; I will also include any creative writing entries which I have found having written them in the midst of a half-awake-half-asleep stage from before and during treatment.
This blog is aimed not only for hypothyroid sufferers, hyperthyroid suffers, or any related diseases including thyroid cancer - it is aimed for people who are interested, just passing by and want to learn something, or, and importantly, people who think they may have a thyroid disease or some kind of problem.
With any thyroid disease it seems to me that you need to know about it in order to find out about it. Of course this means that you may have been living with symptoms for years, and your thyroid may only be getting worse; there may be things about yourself that you have noticed, even that others have noticed - yet no one ever suggests that you have a simple blood test to check your thyroid.
THE THYROID TEST
And that is all it is to check: one simple blood test in which the 'thyroid function tests' are done. This will measure the hormones related to the thyroid:T3 and T4 - hormones produced by the thyroid
TSH - Thyroid Stimulating Hormone; produced by the Pituary Gland in the brain to stimulate the thyroid - quite simply, to tell it to get up and start working!
If you are hypothyroid you will probably have a high TSH (which means that the brain is trying hard to tell the thyroid to work, most likely unsuccessfully) and you will have a low or normal FT4.
If you are hyperthyroid you will probably have a low TSH and a high FT4 and FT3.
THYROID DISEASES: HYPO AND HYPER
So, what exactly is hypothyroidism and hyperthyroidism?
Hypothyroidism, otherwise known as an underactive thyroid, results from the thyroid producing too little thyroid hormone, or thyroxine. Please see below for a list of symptoms, but in short, this causes slow metabolism, which affects much more than you might think. About 1 in 50 women and 1 in 1,000 men have this disease. (patient.co.uk)
Hyperthyroidism, otherwise known as an overactive thyroid, is the opposite of hypothyroidism and thus results from the thyroid producing too much thyroid hormone, or thyroxine. Again, please see below for a link where there are explanations of symptoms (I do not wish to give much details on this specific disease because I cannot be completely accurate as I am hypo, not hyper, thyroid.) but, in short, this causes a metabolism which is too fast, which, again, affects more than you might think. About 2 in 100 women and 2 in 1000 men have this disease. (patient.co.uk)
Hypothyroidism, otherwise known as an underactive thyroid, results from the thyroid producing too little thyroid hormone, or thyroxine. Please see below for a list of symptoms, but in short, this causes slow metabolism, which affects much more than you might think. About 1 in 50 women and 1 in 1,000 men have this disease. (patient.co.uk)
Hyperthyroidism, otherwise known as an overactive thyroid, is the opposite of hypothyroidism and thus results from the thyroid producing too much thyroid hormone, or thyroxine. Again, please see below for a link where there are explanations of symptoms (I do not wish to give much details on this specific disease because I cannot be completely accurate as I am hypo, not hyper, thyroid.) but, in short, this causes a metabolism which is too fast, which, again, affects more than you might think. About 2 in 100 women and 2 in 1000 men have this disease. (patient.co.uk)
SYMPTOMS OF HYPOTHYROIDISM
There are many symptoms of hypothyroidism, and you may find that you have some which are not on the 'most common' symptom list, or which do not appear to be related to the disease at all. However, if you are treated for hypothyroidism and you find that your symptoms go away then it is most likely that your thyroid did cause those problems, and that is fine.
Please see the 'excellent symptom checker...' link under the heading 'useful thyroid sites, blogs and info' on the left-hand column for a fully-detailed thyroid-symptom checker. Note that on many websites you will find that symptoms quite often appear to relate to women more than men - this is because the disease is more common in women, although it is still possible for a man to get it.
The most common symptoms according to most websites are:
Personally, I have found that, although I have had many of the symptoms related to hypothyroidism, there are some areas in which I actually seem to have the opposite! This is probably due to other reasons, perhaps initially caused by the irregularity of hormones thanks to the thyroid. I also have digestion problems which appear to be related to the thyroid - such as acid reflux and an apparant intolerance to those harder-to-digest foods which would obviously require a faster metabolism to deal with.
If you feel that you have many of the thyroid symptoms listed, see your doctor and request a blood test.
Please see the 'excellent symptom checker...' link under the heading 'useful thyroid sites, blogs and info' on the left-hand column for a fully-detailed thyroid-symptom checker. Note that on many websites you will find that symptoms quite often appear to relate to women more than men - this is because the disease is more common in women, although it is still possible for a man to get it.
The most common symptoms according to most websites are:
- Tiredness/ Fatigue/ Excessive sleep
- Short stature
- Memory problems
- Concentration problems
- Sluggishness
- Depression
- Slowness, especially of thoughts etc
- Weakness of muscles
- Dry/Pale skin
- Increased awareness of the cold
- Weight gain
- Heavy, irregular, or prolonged periods
- Losing hair/thinning hair
- Slow heart rate
- Fertility problems
- Constipation
- Puffy appearance
- Swelling at the front of the neck
- Sensation of a lump in the throat
Personally, I have found that, although I have had many of the symptoms related to hypothyroidism, there are some areas in which I actually seem to have the opposite! This is probably due to other reasons, perhaps initially caused by the irregularity of hormones thanks to the thyroid. I also have digestion problems which appear to be related to the thyroid - such as acid reflux and an apparant intolerance to those harder-to-digest foods which would obviously require a faster metabolism to deal with.
If you feel that you have many of the thyroid symptoms listed, see your doctor and request a blood test.
SYMPTOMS OF HYPERTHRYODISM
The symptoms of hyperthyroidism are generally opposite to those of hypothyroidism and include:
Useful websites to look at:
....And in the next blog:
There should be some good old creative writing entries coming along soon.
I will also post some information about the causes of thyroid diseases and the treatment soon.
Please post comments and let me know how useful (or not?) this blog is, along with any additional information you'd like to see.
- Restlessness
- Anxiety
- Losing weight
- Excessive sweating
- Diarrhoea
Useful websites to look at:
- Thyroid UK have a symptom checker for both hypo and hyperthyroidism. Refer to the 'thyroid conditions' section on the website: http://www.thyroiduk.org/
- British Thyroid Foundation: http://www.btf-thyroid.org/
....And in the next blog:
There should be some good old creative writing entries coming along soon.
I will also post some information about the causes of thyroid diseases and the treatment soon.
Please post comments and let me know how useful (or not?) this blog is, along with any additional information you'd like to see.
Saturday, 27 June 2009
Find Me Something I Want To Read!
TAGS
24/12/2009:
Today I have made a change to the tags on this blog. There were far too many and it was becoming impossible to to keep up with them, even for me, so I can only wonder how useful they were to you. On this page there is a list as well as an explanation of all the new tags, along with useful links which you might quite like.
A while ago I created the following tags:
- Thyroid Newbie - For those only recently diagnosed with thyroid disease.
- Current Sufferer - For those diagnosed a while ago.
- Any One - For anyone else: the general public; people who know nothing about thyroid disease; people who know a lot; for doctors, teachers or any one else.
I have changed these tags into the following:
- Thyroid Newbie - Remains the same. May also be useful for people who were diagnosed a while ago but who are currently in a hypothyroid state.
- Current Sufferer - Remains the same.
- Thyroid Oblivious - For people who know absolutely nothing about thyroid disease and may not of even heard of the thyroid.
- General - For a general audience which may include all of the above and more.
Along with the above there are also more tags:
- Hypothyroidism - Specifically about the underactive thyroid.
- Hyperthyroidism - Specifically about the overactive thyroid
Information; Interesting Discoveries
- Media Thyroid Awareness Studies - How well does the BBC; do the newspapers; does the radio, encourage awareness of thyroid disease? Here you can find out everything from my own studies and research of this awareness to personal opinions and examples of articles and videos through which awareness is raised. There is also a space for your opinions which I want to hear on this matter - how good do you think awareness is? Myself, as well as many others went undiagnosed for several years hypothyroid - why? - because no one knew how to spot it, and because thyroid symptoms are so gradual and so ridiculously ordinary that it is really difficult to spot them. Would awareness help? How many people do you know who have heard of the thyroid but couldn't tell you a single thing about what it is or what it does, or even where in the body it is located? Let me know - I want your opinions. I've got surveys and polls about this too and you'll find some of them here or under the 'Surveys + Polls' tag.
- General Thyroid Awareness - How well do people know about the thyroid and its diseases? Is it taught in schools or throughout the education system? Who needs to know about it and who doesn't? Who is more likely to know about it? Find out all this here. Includes research and surveys on this issue.
- Surveys + Polls - I have a few surveys and polls running which I would appreciate responses from. They are proving to be very interesting and you will see updates posted on here occasionally about these results.
Causes, Discovery, Treatment & Symptoms
- Causes - Causes of thyroid disease
- Discovery - What the tests are for finding out if you have thyroid disease; what is tested, and what the results mean.
- Treatment - The most common ways to treat the diseases.
- Hormones - All about the hormonal (or endocrine) system in which the thyroid gland is located and the functions of the different hormones within your body. Hormones which may be referred to or written about in detail include (use the search facility to find posts with these in):
- T3 - Thyroid Hormone
- T4 - Thyroid Hormone
- TSH - Hormone produced by the Pituitary Gland in the brain to stimulate the thyroid to release T4
- Prolactin
- Estrogen/Testosterone
- Blank - A regularly-occurring personal symptom which I believe is also common in other people which I have come to name, quite simply, as 'Blank.' It means that at rather random hypothyroid times you all of a sudden quite literally blank and have no idea what is going on around you. "Um, what was I just doing?" "What was I just saying?" You've got a list of things in your head which you're going through one by one and then all of a sudden "what's next?" And everyone looks at you like you're a very strange person. Find out more about this symptom and about how to deal with it here. You will also find personal viewpoints and creative writing entries about Blank on my more personal blog: Life With A Headless Metabolism: Thyroid Disease (on the Everyday Health website).
- Blur - Another common personal symptom which I believe is also common in other people, commonly known as 'blurred vision' but which I simply refer to as 'Blur.' You will find personal viewpoints and creative writing entries on my more personal blog but to find out more information about this symptom and how to deal with it, here's where you want to be.
- Brain Capacity (Fog) - Covers Blank & Blur as well as a general lack of concentration, memory and brain power.
- Energy + Activity V Fatigue - Information about how the thyroid affects your energy and causes fatigue. There may be some creative writing entries listed under this tag.
- Reflux - Information about the thyroid's affect on digestion and how it might possibly cause reflux or, if not, then all about reflux and food regurgitation themselves.
- More Symptoms - Any symptoms not with their own tags
- Weird, Wonderful + Embarrassing Symptom - Self-explanatory. Coming soon.
More on the Thyroid & The Stomach
- Food - Covers everything from information about the thyroid's effect on digestion to what foods are advised to eat and what foods aren't.
- Drink - Covers everything from information about the thyroid's effect on digestion and the stomach to what drinks are advised to drink and especially about the alcohol and the thyroid's effect on that.
Opinion, Info & Advice
- Opinion - My own personal opinion on various issues to do with health. There may also be opinion from you which I am very much open to, and collections of various opinions on the internet and so forth.
- Tips + Advice - Simple things to do which may help you cope with thyroid disease - taken from collected advice or from my personal experiences. Positives and negatives are usually stated.
Creative & Different
- Laughs - A light-hearted take on the thyroid for people to laugh at and enjoy. There may be few or no posts with this tag at the moment but keep an eye out for more soon.
- Creative Writing - Entries which I have found from the past couple of years, even some before I was diagnosed, and thought represented thyroid disease very well. There may also be new entries.
- Multimedia - Covers video, images and any audio which I have made myself.
Extras
- Blog Advertising - Any useful links to where my blog is advertised; information about why this blog might be useful to people; posters and so forth.
- Blog Updates - For when I make changes to the blog like this change of tags.
- Links - Useful links, mainly about thyroid disease but one or two may be recommended non-thyroid links.
- My Spaces - Other places on the web in which I live a little or a lot, and ways to contact me. These include links to my other blogs and websites which I participate in; websites which have linked back to my blog(s), as well as much more.
Saturday, 13 June 2009
Imagination On A Headless Metabolism
Some people like to write facts about their thyroid and some people like to read those facts.
Some people like to write a daily entry about how they feel, and some people like to read that.
Others like to dress their thyroid in hilarious or frightening images; with strong words or brilliant movie clips, and some people like to read or watch those too.
These links are the places where you can find these creative, colourful entries: things that make you laugh and things which make you cry; things which make you happy and things which make you sad. These are the brilliant places on the net which you can never read or watch enough times, and here they are:
Some people like to write a daily entry about how they feel, and some people like to read that.
Others like to dress their thyroid in hilarious or frightening images; with strong words or brilliant movie clips, and some people like to read or watch those too.
These links are the places where you can find these creative, colourful entries: things that make you laugh and things which make you cry; things which make you happy and things which make you sad. These are the brilliant places on the net which you can never read or watch enough times, and here they are:
- Dear Thyroid - A website encouraging people of all ages to write letters to either their own thyroid; their friends' thyroids or their family's thyroids. The letters are often outspoken or brilliantly imaginative and for those who want to write a letter on the site, the subject and content is completely open so long as it is not offensive. See if you can find my letters on here too!
- Celebrities with thyroid disease; Examples of Thyroid Comics and photographs; Thyroid Jokes - click here
- Thyroid Cartoons
- Quiz about Thyroid Disease
- A Thyroid Theme Park
Also check out my creative writing and multimedia tags for this blog.
Friday, 12 June 2009
Great Thyroid Information
Official Sites
- British Thyroid Foundation
- NHS Hypothyroidism Information
- Patient UK Hypothyroidism Information
- Patient UK Hyperthyroidism Information
Non-Profits, Awareness & Charity Sites
- "Check Your Neck, Save Your Life!" - Thyroid Awareness Month (US) - January
- Thyroid Awareness Week (UK) - The first ever one was May 2009
- Thyroid UK
- Butterfly Thyroid Cancer Trust
- TPA (Thyroid Patient Advocacy) UK
- Hypothyroidism Symptom Checker (detailed)
- Thyroid Disease
- Misdiagnosis Stats
Find the right info...
- HYPOthyroidism/ Hashimoto's
- Both TPA UK and Thyroid UK have brilliant symptom checkers for hypothyroidism and these checkers are by far the most detailed and representative which I have found.
- About.com Thyroid Disease is a very useful blog-type site which is always up-to-date on the latest thyroid news.
- The forums on Thyroid Help are really helpful and offer a friendly community to answer questions
- Medpedia's Thyroid Disease Community, of which I am a community administrator, is a fantastic place to ask questions or find out more about thyroid disease. Check out my post about the website here.
- HYPERthyroidism/Graves Disease
- The above links for HYPOthyroidism also apply here and may be very useful.
- In addition, Disease.com has a section on Grave's disease with informative articles.
- Thyroid Cancer
- The Butterfly Thyroid Cancer Trust is a charity specifically supports people with thyroid cancer.
- All of the awareness or charity websites would be useful in this case.
Specific symptoms
- Hair Loss
- Mind symptoms
Thursday, 11 June 2009
Links
Here is a collection of fantastic links
Click each submenu item to navigate through them
Click each submenu item to navigate through them
About This Blog
Have you ever heard of the thyroid? Do you know where it is; what it does; what it's controlled by; what it can cause?
1 in 5 have thyroid disease.
Over half of the 13 million cases of thyroid disease in the US are undiagnosed - that's 1 in 20.
Thyroid disorders are misdiagnosed as everything from depression to Alzheimers to obesity or anorexia.
They can cause infertility, weight gain or loss, depression, extreme fatigue, tremors, palpitations, blurred vision....the list goes on and on.
Many people go years before they are finally diagnosed, but detecting thyroid disease is usually by a simple blood test, and treated with medication.
In May 2009 the world saw the first ever international thyroid awareness week. So far as I could tell, the media didn't even refer to it. Thyroid disease, like I guess any disease, can run a life. And it may well be the cause of some of the world's greatest challenges - obesity; infertility; depression...
This blog is aimed to raise awareness of thyroid disease - to teach those who have never heard of it, or who know only one or two things about what the thyroid can do. It is aimed to lower those figures of misdiagnosis and the undiagnosed above, and to reduce the amount of years which people are hypothyroid or hyperthyroid simply because no one knew how to spot their symptoms.
In addition, this blog offers advice to people who are 'Thyroid Newbies' or 'Current Sufferers' - to find posts which might help you, search for the tags by those names.
In order to raise awareness without claiming things with no meaning, I have taken a knowledge-full approach to finding out what the current state of awareness is - and that means looking at the media and at what people actually know. And what I have found shows that:
you have to know about this disease to find out about it- so how are people supposed to be diagnosed?
The thyroid is a small but mighty gland in your neck.
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