Did You Know...?

One day this disease which quietly grants those of us in the UK a prescription payment exempt card, showing clearly how some official somewhere is aware of the seriousness and the amount of people it affects, will be taken just as seriously in the public world.

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Which Charity

Which Charity was a website set up by myself and friends, with the aim of allowing users to find causes they are interested in and ways of helping they prefer. It also had the aim of raising awareness of and supporting various charities through free advertising. Check out the official video here: http://www.youtube.com/user/WhichCharity ..and 'The Charity Supplement' here: http://www.scribd.com/Which%20Charity (note that there are many thyroid awareness documents included in this list) The website has now been handed over to a new team of keen, qualified individuals who have the time to take it further.
Tuesday, 14 July 2009

13 Reasons For A Poppycock State Of Awareness

20:05 | Posted by Louise Sopher | Edit Post
13 reasons...
...not to be harsh on those who didn't spot our thyroid disease years ago...
...not to complain for the lack of pointing at our necks

Rant of the day....

  • 1) INNOCENCE - They didn't know - thyroid awareness is so absolutely rubbish that how could they?
  • 2) LACK OF ORIGINALITY - The symptoms are so common that they thought it was "just you" and that was the end of that. Come on, fellow thyroid patients, let's use our imagination and create more original symptoms to cue the "danger" alerts in their brains!
  • 3) "IT'S YOU, YOU, YOU" - They pointed at your personality; your academic abilities; other reasons, to explain your strangeness. It's not their fault that they couldn't see the cause.
  • 4) EVERLASTING - They have always known you that way and so cannot see that it might be a disease.

  • 5) Pshh, it's probably nothing to worry about! Ignorance.

  • 6) TEACHERS - especially PE and Science teachers: well, you get on and do your work as you should, so you're not causing such a big problem like the hyperactive ones....yes, THAT'S because I'm HYPOthyroid!

  • 7) Pshh, it's just puberty!

  • 8) TEACHERS - Hmm...maybe some extra lessons, and then more extra lessons, will do the trick! Have you ever thought of the wider view? That not everything is focused on school?
  • 9) DOCTORS - Specifics come to them presented in the order that the list portrays. Without those specifics they will not test for more specifics. They will not ask if you have the specifics because, well, now that would be a leading question, wouldn't it?
  • 10)...and US - But when you are living in that state of everlastingness, assuming that anything is just "you" and not pinpointing those specifics because you do not realise that they are not normal - why would you if you are so used to them and they are just "you"? - you will not notice them until you start to compare yourself to others and you cannot do that in a state of total mind-blank, staring-into-space-because-your-head-cannot-focus-on-the-fast-movements-around-you - therefore, to conclude this extra-long sentence, you won't point out the specifics, therefore the doctor's cannot possible see it. It is a symptom-directed, check the box world, that we live in, and unless you check enough of those boxes in the doctor's head or on paper, they cannot possibly diagnose you.
  • 10b) Still US - Well, when our thyroid goes down, do we notice it immediately? No we don't. Why? Because it goes with the culture of life - "ah, I'm just tired today, how interesting" ...No, you silly, silly person, remember, it's your thyroid! And two or three weeks later we are sleeping half the day and dizzy the rest of it, looking like a version of Michael Jackson's 'Thriller' when we walk! Not making that mistake again!
So, honestly, if we can't work it out ourselves, how can we really expect anyone else to spot it before they even know about it?


  • 10) THE MEDIA - Newsworthiness: Pshh, they're not life threatening, so let's not mention it. It doesn't match our news values.
  • 11) EDUCATION AND THE TEXTBOOKS - Particularly all that rubbish about growing up: pssh, well not EVERYBODY gets it, do they? - No, but many do. - Ah well, if they're short, they're short, there's no reason to cause a panic. - True, but if you tell them, they might actually grow!
  • 12) THE GOVERNMENT, TEACHERS, BUREAUCRACY - relating to the above: "Well if it's not in the syllabus, then DON'T mention it, you're wasting time and money!"

  • 13) And for those who spot the more personal symptoms which often relate to the thyroid and which are not, by this society, 'normal', but fail to point you anywhere near a blood test: "well, it's too personal, isn't it? I mean, you can't mention that!" Fear.
  • 14) Finally...FELLOW PEERS - well, of course you wouldn't notice - anything strange would either become the jokes or not-so-funny-jokes of our school days, or would simply be what you associated with me. Of course you couldn't of guessed - you weren't taught it, not ever, and it's not advertised, not anywhere.


So, let's make sure we're not harsh on the ignorance of others!

Seriously though, every poster in a GP surgery is seen by at least one eye; every paragraph in a textbook by at least one student, and a gory picture by the whole class; every advert, or skimmed-through news announcement on the television, or online news, is also seen by at least one eye, or heard by at least one ear - that's an awful lot of simple awareness that we're missing out on. And it can mean years of difference for an undiagnosed, unsuspecting - except for perhaps the 'weirdness' that they cannot explain - child, teenager, student, adult, mother, father, you.

Let's sort it. Now.




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